Resources

GSD Resources

The below links are resources to provide additional GSD information, research and community support:

GSD Information

Association for Glycogen Storage Disease (AGSD)

The Association for Glycogen Storage Disease was established in 1979 in order to create an organization which would be a focus for parents of and individuals with glycogen storage disease (GSD) to communicate, share their successes and concerns, share useful findings, provide support as needed, create an awareness of this condition for the public, to stimulate research in the various forms of glycogen storage diseases and have the results communicated – to the parents, affected individuals and the public – as soon as possible.

Glycosade Research & Resources

• Corrado MM, Ross KM, Brown LM, Correia CE, Weinstein DA. Assessment of Safety and Efficacy of Extended Release Cornstarch Therapy in Glycogen Storage Disease Type Ia. Journal of Inherited Metabolic Disorders (2013) 36: Suppl 2; S227-228.
• Glycosade Patient Guide (English)
  
• Glycosade Patient Guide (French)

External Links

• Correia CE, et al. Use of modified cornstarch therapy to extend fasting in glycogen storage disease types Ia and Ib. American Journal of Clinical Nutrition (2008) 88: 1272-6.

GSD Community Support

• Association for Glycogen Storage Disease – http://www.agsdus.org
• GSD Life social network – https://www.facebook.com/gsdlife/
• Children’s Fund for Glycogen Storage Disease Research, Inc. – http://www.cureGSD.org

Rare Disease Community Resources

• National Organization of Rare Disorders (NORD) – http://www.rarediseases.org/
• NBS Connect – https://nbs.patientcrossroads.org/

For Healthcare Professionals

Nutrition in Glycogen Storage Disease Recorded Lecture Presentations